Fighting Cancer - My Journey: 2008

Wednesday, December 24, 2008

The Final Day of Chemo

What a day! I was really anxious to finish up today and was up at 5:00am even though my appointment wasn't until 10:35am. My wife took some pictures of me with the needle in the port and pump that I'll probably use as a dartboard eventually!

We brought in a cake and card and the staff was great and cuddled me with hugs and kisses...it was an emotional experience! To finish on Christmas Eve is quite a way to finish.

The neuropathy is still kind of bad, but I can deal with it. I have my first follow up in a month for bloodwork and port flush and we'll see where this journey leads after that.

Merry Christmas to all and Happy New Year!!!

Tuesday, December 23, 2008

2nd to last day of treatment :o)

I had my second to last treatment today and then they connected the portable infusion pump that I'm wearing for the last and final time!

It's so nice to be finishing my chemo rounds on Christmas Eve. Tomorrow when I go in, I'll be taking cards and gifts for the wonderful and professional staff that have been caring for me these past six months.

It's so hard to believe that it's finally going to be over, but it also seems like it didn't start all that long ago either. I'm feeling a lot more fatigue with this final round, but keeping in mind that it IS my final round.

Monday, December 22, 2008

Starting Final Round of Chemo

Today started off kinda bad, but ended a bit better because I wasn't going to let anything bother me during this final round of chemotherapy.

First of all, it started snowing here last Friday and didn't stop until last night and then a quick freeze settled in. With the gusty wind, it brought in windchills in the -10 to -3F range by this morning. So we got up early this morning to get a head start on a busy day.

My wife and I both got stuck from where the plow had dumped in front of our cars, so we were out there for quite awhile until we finally got both cars free from the snow. She left for work and called me when she got there to say that she made it okay and the highways were in much better shape. I then left for my chemo appt at 6:55am, even though I didn't have to be there until 8:00am. I was there by 7:30am and was able to get into the facility and wait until the staff showed up.

My white blood cell count was pretty low, but my oncologist said that it was within range and after discussing it with me, opted to continue without any delays. He also said that I've been a model patient (maybe he says that to all the patients?) and asked me if I'd be willing to talk with new patients that had some fear and/or concerns regarding the folfox treatments that I've been having. He said that a re-assuring veteran of the program could really calm a newer patient. Of course I told him that I'd be more than glad to speak with anyone that he wanted me to and I told him how my friend, Rob, is the main person that I, myself, had communicated a lot with when I was first diagnosed, and Rob has been a true friend throughout my whole journey and we still keep in touch via email, although we've never met due to the distance in where we both live.

Rob is now "cancer-free" and although I think I've posted his blog a few months back, here is another link to it :

http://rocamata.com/default.aspx

When I went into the treatment rooms, all of the other doctors and oncology nurses were coming by to wish me Merry Christmas and congratulations on finishing up this week. They are truly a great, professional and fun group and have really made it somewhat enjoyable (if that makes any sense?) to go through chemotherapy with.

Before leaving today, my oncologist spoke with me about the follow-up again and said it would about early summer (if all goes well) when I'd be having the mediport implant removed. I'll have to be monitored closely for a short period, then every 6-8weeks I'll go in to have both mediports flushed (it's a dual catheter port). After that some PET/CT scans and my follow up scope check. My bloodcounts are expected to recover slowly, but my immune system is low and I'm still at risk for catching infections from others while in the early follow-up stages.

So, day 2 tomorrow (Tuesday)of the treatments, they'll disconnect the pump then start the IVs before re-connecting the pump for the last time and on Wednesday (in 2 days) it will be out for good!

Now it's siesta time and I hope to wake up for the season finale of 'Prison Break' tonight.

Monday, December 15, 2008

Off - Week

I'm watching the *time* a lot this week!

This is my final "off-week" and I have a LOT to get done before starting my final treatment week next Monday!

The tingling in my fingers (neuropathy) is pretty bad and even trying to button a shirt is harder than usual, but I was warned of this and will manage to get past it somehow. The nerve damage is giving me some gastro tract *issues* as well.

I participated in our worldwide virtual band's 3rd annual Christmas song collaboration. We dedicate this year's song to the troops overseas and others who haven't been home for a long, long time. "Please Come Home For Christmas"

http://soundclick.com/share?songid=7148733

One step at a time, that's the only way and it has worked so far. Happy Holidays!

Thursday, December 11, 2008

Round 11 Finished - One more to go !!!

Today's treatments went well and the doc's report was very positive sounding. I had the mediport flushed, talked about some of the follow-up procedures and then was disconnected from "the pump" for the second to last time!

I have a dual mediport implanted and when I go for follow-up they will flush BOTH ports with the 4" needle at the same time. I'm glad this is only every 6-8 weeks or as needed depending on a variety of factors. At least I have piece of mind that I won't be leaving attached to the pump.

So, it looks really good for December 22nd, 23rd and the grand finale on December 24th (Christmas Eve). I'll have to take a cake, cookies and stuff for the oncology nurses and doctors. I feel very fortunate to have had a very compassionate and professional team of physicians and nurses during this whole journey.

Wednesday, December 10, 2008

Next to last cycle

Today's chemo treatments went well. I'm at the point where even if they didn't go well that I don't think it would bother me because I'm being optimistic and focused on finishing this in TWO weeks from today. :-)

I didn't sleep well last night, which is usually the case after getting the eloxatin, but I snoozed for about two hours during today's treatments (and didn't snore, or so they told me?).

My doctor said that I was doing excellent with my white bloodcell counts and platelets counts and that leads to me to think (and hope and pray) that my treatments will end on Christmas eve.

I'll be starting follow-up in January, but the worst of it will be over very soon!

Tuesday, December 9, 2008

Round 11 (of 12)

Well, I'm into my ELEVENTH Round of chemotherapy now. My oncologist told me today that the neuropathy will probably still be evident for another several months. For that reason, they will be doing follow-up bloodwork, CEA blood tests, PET/CT scans and mediport maintenance.

It went okay today and some of the nurses came by to "remind" me that the end is near. It's nice of them, but I don't need to be reminded. I'm kinda/sorta at the point where I've had enough. It will be great to be disconnected for the LAST time and to eventually have the mediport taken out of my chest.

That said, I still don't want to get ahead of myself because any little thing can change the schedule and/or progress, which has been very good so far with only one setback that delayed treatment back around cycle 5 I think?

Thursday, December 4, 2008

Stand Up To Cancer

If you turned on the national news September 5th, you might have been surprised to see all 3 major network anchors broadcasting from the Kodak Theatre in Los Angeles. Putting their usually intense competition for ratings aside for the night, Katie Couric, Brian Williams and Charlie Gibson joined forces in support of a higher priority...putting an end to cancer!

Together the anchors hosted a historic hour-long telecast, shown commercial free on the 3 major networks and in more than 170 countries. The telecast raised more than $100 million to support a new initiative called "Stand Up To Cancer" founded this past May.

To learn more about it, you can click on the title of this post or go to www.standup2cancer.org

You can buy a "star" for one dollar in honor of loved ones or friends (I've done this and it is a gratifying experience).

Stand Up To Cancer is bring people together to give researchers the resources that they need to launch an all-out assault on cancer.

Wednesday, December 3, 2008

Christmas Time

"Tis the season...I'm trying to keep a positive outlook, but I haven't done much shopping for Christmas gifts yet and next week is my 11th cycle of chemo. Stress and anxiety are kicking in.

Many have told me that the last two cycles can be the toughest with the cumulative side effects of the oxaliplatin mostly. It's also getting a lot colder and I'm already wearing layers to keep warm.

The neuropathy, fatigue and digestive tract "issues" seem to be the worst, as they have been since starting chemo. I can't feel the little "bumps" on the "f" and "j" keys, so typing is slow and I have to keep going back to correct things.

I'm also trying to add my guitar parts to an annual Christmas collaboration project that I've been doing for the past three years now. This year's song is "Please Come Home For Christmas" and is dedicated to the military troops overseas and to others who haven't been able to get home for a long time. I'll post a link to the song when it's finished.

Monday, December 1, 2008

One Step At A Time

A little while back, I had mentioned that a girl from South Dakota had heard a song that I wrote when I started chemotherapy. It was an instrumental piece with no lyrics or vocals.

Well, long story short, she wrote some lyrics which I'd posted awhile back, but they are also in the song info at this link, and she has just finished recording the song and I'd like to share it with you...

http://www.soundclick.com/bands/page_songInfo.cfm?bandID=706035&songID=7108988

You can hear more of Melissa Renee's songs at :

www.soundclick.com/melissarenee

Sunday, November 30, 2008

End of November

Chemotherapy is not cheap! I don't know how one without some kind of health plan could possibly afford it. The above is a sample of just my monthly visits/treatment bill. When you add in prescriptions, medical supplies and other items that you use, it can get quite expensive.

I hope that everyone had an enjoyable Thanksgiving with their families. I wasn't too hungry this year, but I had figured that would be the case with Thanksgiving being during a treatment week. Christmas is going to be during a treatment week also, but it will be my last cycle.

Tomorrow marks the beginning of December (the shortest daylight of the year month) and the weather is just starting to get cold, but so far no snowstorms. I'm looking forward to my upcoming 'off-week' and REALLY trying to keep away from crowds or anywhere that I could get sick due to my weakened immune system.

Wednesday, November 26, 2008

5 Months of Chemo finished !

I went for my treatment today and it was another short one. I got a great informative publication from my oncologist about "living with, during and after cancer" and some great informative links that I'll post a little bit later.

I had my port flushed with a heparin lock and then was disconnected from the portable infusion pump...ah...what a great feeling!

Not sure what I'll be feeling like later or tomorrow, but I'm hoping to be well enough to go to my nephew's house for a little while. My platelets and white blood cell counts are pretty low and that makes my system's immunity level very low, so I'll have to stay away from anyone who is sick, or possible not go, but I'm hoping that everything work's out okay.

Tuesday, November 25, 2008

No sleep last night !

I'm not sure what they mixed in that anti-nausea IV that they gave me yesterday, but I slept for a few hours in the late afternoon, then was up until midnight, then I tried to go to sleep, but kept tossin' & turnin', so eventually got up and started playing piano with headphones on.

When I went for today's chemo, I asked my oncologist during my exam and he said it was just the usual anti-nausea meds IV. Then I asked the same question to the oncology nurse that I had and she said it might have been a little stronger with yesterday's dose but it ususally lasts about 3 days.

I took a "baby card" today to give to one of the Physician's assistants, who has been a great source of information and help since my starting chemo back in July, but she wasn't in and my oncologist said she called in with contractions. Her due date is December 25th, so we discussed it as maybe being new and first baby and possibly a false alarm? I guess I'll find out more tomorrow, but I left the card with my oncologist to give to her. I'll be back tomorrow, but she might not be? She had planned on starting her maternity leave at the end of this week anyway.

Today's treatment was the shorter one with just the port flush, unhook the IV lines from the portable infusion pump and connect me to the IVs on the stand. I took some very quiet Christmas music to listen to and felt myself sleeping and starting to snore once or twice, only to wake and open my eyes and see others staring at me. I apologized and told the group that I didn't get much sleep and to just kick my chair if it happens again. One gentleman said that it didn't bother him at all and snore away!

Anyway, finished up the leucovorin and saline, then my infusion pump was filled with 5-FU while they flushed the port and re-connected me to the pump and I was good to go. It really poured today, but it was warmer out. There were some vivid lightning strikes that we could see clearly overlooking Wellesley Hills along with a wind-driven rain.

Monday, November 24, 2008

Round TEN has started !

Or 'cycle' ten, although at this point it seems like a boxing match and it's in 'round' ten. It's been a long ride from the hot humid summer days of treatment to the colder fall into winter weather treatment days. I needed gloves and had to dress warm and needed two blankets during treatment today. The nurses are very helpful in that respect.

I had an early appointment this morning and decided to update this blog before laying down for awhile. I went in for bloodwork, then had my exam and then got the 'poke' in the port (for some reason it really hurt today, and a new oncology nurse, maybe a technique issue?), anyway, I'll try to avoid her for the rest of my visits if possible.

After the needle was in and the dressing applied, they started me on the usuals, aloxi and compazine and when that was done, the dreaded Eloxatin (brand name) of oxaliplatin along with leucovorin. After that was finished, they flushed the port and hooked me up to the portable pump of 5-FU (fluorouracil) and sent me on my way.

.

It really knocked me down with today's treatment, more so than I can remember, but I know that the end is near and that helps a lot

Thursday, November 13, 2008

3/4 Finished with Chemotherapy :)

Today I went and had my portable infusion pump of 5-FU disconnected which ends my 9th cycle !

I'm now 3/4 through my treatments!!!

I asked my doctor what the next steps would be when I finished my treatments at the end of this year and when could I have the surgery to remove the implanted mediport with catheter.

He said that upon completing treatments that I would need to come in to have the port flushed every 6-8 weeks, have some blood tests and that he would be ordering scans and we'd take it from there.

I asked if the mediport could come out if the scans looked okay and he said he likes to keep them in until after the followup colonoscopy which would be in May of 2009 for me.

Wednesday, November 12, 2008

Pump Problem

It was another cold day today so I wore gloves and glad I did. My face was very red from the oxaliplatin I got yesterday. This is normal and usually goes away after a couple of days. It was a good visit, good exam report and short infusion then hooked back up to portable infusion pump for another 24 hours.

When I got into my car to leave, the pump started beeping constantly and I noticed it said "shutoff" on the display, so I went back inside and they checked it and re-set it. I hope that it doesn't happen around 3:00am overnight.

The steroids in the meds from yesterday first made me sleepy and I had a nap when I got home. Unable to drink (or even want) cold or room temp beverages, I had a coffee...well...I couldn't get to sleep until after 2:00am....learn from experience...no coffee after mid-day from now on.

My cough and post nasal drip is just about gone. I never filled the Flonase prescription, but the saline nasal spray seemed to work fine with the B-complex and folic acid.

I've accumulated a good sized "med package" that I pull out when I go to chemo now. It includes these items, but not all used each time/cycle :

Lidocaine

Bandages

Medical Tape

Gauze

Anti Nausea Meds

Nyacin Powder (for rashes)

Tom's of Maine drymouth anti-cavity mouthwash

Milk of Magnesia

Senecot

Stool softeners

Antibiotics for certain infections I've gotten.

Saline Nasal Spray

and other prescriptions that I haven't had to fill.

I've probably forgot about some of them too...chemofog syndrome most likely.

Tuesday, November 11, 2008

Cold and Windchills - 9th cycle continues

Today was the coldest day yet that I had to drive to my chemo treatments. It wasn't too bad driving there at 7:45am (about 35 degrees with a windchill that made it feel like 25 degrees). I wore a winter coat, sweater, warm shirt, undershirt and GLOVES.

Coming home I was shivering the whole way home and couldn't wait to put on an extra pair of socks and a heavy sweater, even though the heat was on and it was 77 degrees inside! The oxaliplatin is the worst chemo med in my opinion. Maybe in the near future they will have something that only kills the bad cells and not the good cells with it?

I came home, got warmer and decided to have a nap. Naps are your friend during chemo infusions. I'm hooked up to my infusion pump of 5-FU and will be going back tomorrow. Due to the numbness in my fingers, this is taking me a much longer time to type, so I'll keep it short and update later in the week.

Sunday, November 9, 2008

Starting 9th Cycle

I'll start my 9th cycle (of 12) tomorrow. This is a HUGE milestone for me and if at the beginning anyone had told me that I'd be feeling this good after 4 months of chemo, I never would have believed them!!!

Yeah, there are days that are not very comfortable, but all in all, you learn how to deal with it and get over it. I'm just now starting to see that light at the end of the tunnel and can't wait to have this mediport implant taken out of me and not having to drag a portable infusion pump around. But, I won't get ahead of myself, I still just think positive and go one step at a time and deal with whatever issues I'm facing and keep movin' on.

So with 2/3 of my treatment down, I begin the final 1/3 and last 4 cycles tomorrow and I thank all of you for your support and I sincerely hope that this blog will help anyone else who finds themselves with a similiar diagnosis. It is treatable and beatable !

Saturday, November 1, 2008

November 1st and 2/3 through chemo !

It's been a long journey since my colonoscopy last May, 2008, but I can now see a light at the end of the tunnel.

There were a few bumps when I started my chemotherapy that involved having to have my implanted catheter port re-worked and a setback due to low white blood and platelet counts, but this past week, cycle 8 of 12, went about as well as can be expected.

The Oxaliplatin is the main contributor to the most significant side effects, the other chemo meds don't really give me much problems other than some mouth sores, body/skin rashes, headaches and general fatigue, along with the chemobrain or chemofog, which I'm told is similiar to the likes of a mild form of the symptoms of early Alzheimer's. The main thing is that these will all go away when my treatments end after the last week in December.

In life, you take a lot of things for granted until you find yourself not being able to do such everyday things as move around without a pump attached to you, drink a cold glass of water or soda, reach into a fridge without gloves, play a guitar without really "feeling" the strings and even typing on a keyboard can be more time consuming as the neuropathy gives you a numbness in your fingertips and you can't "feel" the bumps on the "F" and "J" keys, so you have to watch as you type and correct manually afterwards.

So, with only 4 cycles left to go of treatments, I do see the light getting a little brighter each day at the end of the tunnel and I look forward to the follow up CEA blood tests, the CT scans and PET scans, having this catheter-port removed and the final follow-up colonoscopy which will be an annual check for the rest of my life.

Again, thanks to all for your continued support and best wishes for the upcoming holidays!!!

Tuesday, October 28, 2008

I'm into my 8th cycle (2/3 of treatments)

I'm back into a regular routine with the full chemo regime. It's not a very comfortable feeling with the neuropathy and fatigue along with this post nasal drip, cough and the usual side effects and a few surprise ones. :(

My oncologist examined me and said that my lungs were clear and thought that the drip and cough might be allergy related. I tend to disagree with him, but after thinking about it, I suppose that it could be?

He said to continue to use the saline nasal spray and Delsym cough medicine and if I thought it would help, I could try Flonase, which is loaded with steroids...

"For best results, use FLONASE daily. Your nasal symptoms may begin to improve in as few as 12 hours. Maximum relief may take several days. Results may vary. If side effects occur, they are generally mild and may include headache, nosebleed, or sore throat. FLONASE is available by prescription only; ask your healthcare professional if FLONASE is right for you."

I chose to hold off because I DO think the cough and post nasal drip is getting better and want to try the saline spray and Delsym (which I only started with last Friday night) for a bit longer.

http://www.delsym.com/

In looking at the calendar today, it appears that if all goes well (and that's a big "IF") that I will finish my chemotherapy treatments the week of December 30th. :)

After that, there will be CEA blood tests and monitoring followed by scans. I'll be having my follow up colonoscopy shortly thereafter which will be an annual procedure. Thanks again for all of the well wishes and positive thoughts and prayers...they are working!

Tuesday, October 21, 2008

Random Thoughts

While going through the journey that one undertakes after being diagnosed with cancer, it is easy to lose track of time.

You learn that this is a time when you have to really put things aside and focus on the healing and remission. It is not easy to have to pass on invitations and family gatherings, but with your immune system so low at this point, you must concentrate and stay focused on the most important thing...your health.

I'm lucky to have a large and loving family and I just want them all to know that I REALLY appreciate all of their support, love, kindness, well wishes, prayers and positive thoughts as we all get ready to enjoy the holiday season.

Saturday, October 18, 2008

Uplifting Week - 7th Cycle finished!

I had just written this entire post, but when I went to publish it, I hit a wrong key and lost everything. So this is my second writing and I'm trying to remember everything that I had written/typed previously...

This past week of chemo has been filled with some very nice surprises. First of all, I'm now finished my 7th cycle with 5 left to go and should finish up around January 1st, taking into consideration the upcoming holidays. I have a few small, itchy spots from the meds, but that is all. No nausea, cold sensitivity or any of the other side effects that I previously had. Without having that Oxaliplatin, it was "almost" a pleasant experience.

You've probably noticed the guitar and get-well card that I receive from Fender (FMIC). Today I got an email from a wonderful female singer/songwriter who has been working on lyrics for a song that I wrote and played the music to, called "One Step At A Time" when I began chemo.

Melissa Renee, a Country & Christian singer from South Dakota, had previously sent me a sketch of her voice and said that she felt compelled to write lyrics and sing this song. She has written the following lyrics :

One Step at a Time-

One step at a time-

Is all I can take today-

No amount of hurry-

Can ease the way---

Just one step at a time-

One step at a time-

Everybody telling me-

Do they really believe?---

But I do, I do-

I take one step, one step at a time---

Believe me, I’ve tried-

Running head long through life-

But then I didn’t understand-

Didn’t see the plan, takin’ it---

One step, just one step-

One step at a time-

Searching for mercy-

Seeking to find---

Trying so hard just to find-

Simple pleasures, distract my mind-

Breathing in, breathing out-

Gaining faith and losing doubt---

I do, I do-

I take one step, one step at a time---

One, one, one, one, one step-

You and I-

I’ll carry you in my heart-

Even if we have to part---

One step, one step at a time-

One step is all I can take-

One step, then another-

One foot in front of the other-

One step at a time---

One step at a time-

One step at a time-

Breathing in, breathing out-

Gaining faith and losing doubt---

You can hear some of Melissa's other music at this link :

http://www.soundclick.com/bands/default.cfm?bandID=706035

Thursday, October 16, 2008

Finishing 7th cycle

It's been a hectic week, but all is about as well as can be expected when your finishing your SEVENTH cycle and thinking about the five cycles left.

The reduced dosages of chemo helped keep some of the nasty side effects in check so far and the cough is better, but not completely gone yet.

I'm now at the point where the "smell" of the chemo treatment rooms seems etched into my head and senses. I know that the final next 5 cycles will be the toughest, but I remain positive in my thoughts that I can beat this and be cancer-free in a few months.

I wish a special thank-you to all who have sent me well wishes, prayers, mojo and positive thoughts. The card in the picture came with the new Fender Stratocaster from my friends at Fender. What a surprise, to get a Fender Strat unexpectedly and a get-well card from Mike Eldred, VP-Marketing (Fender Musical Instrument Corp.) and Fender Custom Shop manager.

Wednesday, October 15, 2008

Chemo - 7th Cycle

First of all, my other sister's procedure went well with no problems, so she doesn't have to go back for another five years.

Another sister, and myself, will be getting the annual check.

One of the doctors told me today about using something called Ocean Saline Nasal Spray for the nasal post drip and cough if it doesn't get better soon. It's available at most pharmacies for about $5/small bottle.

http://www.walgreens.com/store/product.jsp?id=prod2501966&CATID=100095&skuid=sku2501403&V=G&ec=frgl_587532&ci_src=14110944&ci_sku=sku2501403

It looks like the weather is transitioning and it will be getting much colder by the weekend. I'll have to make sure that I have gloves and dress in layers from now on.

I came home to find a new Fender Strat from my friends at Fender. I'll post pics when I have more time and feel more energetic.

Tuesday, October 14, 2008

Started 7th cycle (of 12)

This week I began my 7th cycle (of 12) and due to low blood counts combined with a touch of bronchitis, my doctor decided to go ahead with the treatment, less the oxaliplatin.

He seemed to think that a combination of the effects from my flu shot, the cumulative chemo treatments to date and the cough and congestion that I'm having contributed to the lower white blood cell count and lower platelet counts.

One of my other sisters is scheduled for her first colonoscopy today and I'm praying that she gets a good report after the procedure.

Thanks for your comment, Paul, and to all that have expressed their well wishes, positive thoughts and prayers for me. They ARE working and I thank you!

Tuesday, October 7, 2008

Birthday

Monday, October 6th (yesterday) was my 57th Birthday (but I don't feel a day over 56).

Just a quick note to thank everyone for the birthday greetings and well wishes!

I'm still fighting a nagging cold after 3 weeks now. Not sure if it was brought on by my flu shot last week, the weather, the chemo meds or just my weakened immune system?,

Saturday, October 4, 2008

October 4th - 2008

I've reached the halfway point of my chemo treatments but this week has left me with a few more 'strange' side effects.

I continue to have a lot of nasal congestion and spitting up phlegm as well as some body sores and mouth sores which I'm treating with Tom's of Maine anti-cavity and drymouth mouthwash and Nystatin powder for the welts/sores.

I'm tolerating it as well as can be expected though and just take it one step at a time. I think that the remaining treatments are going to be a little bit harder on my system and I'm trying to prepare myself for the changes that come with the colder weather such as cold sensitivity (neuropathy).

It's such a strange experience going through chemotherapy. Between the chemobrain syndrome and the constant changes that I've been experiencing, I never know what to expect when I open my eyes.

On a side note, we stayed up and watched the Red Sox win the second game of the A.L. Division Series against the Angels last night and looking forward to game 3 at Fenway on Sunday night. Go Sox!

Thursday, October 2, 2008

The HALFWAY point !

Woooo Hoooo...

I'm almost finished with my 6th cycle which is the halfway point of my chemo treatments.

After tomorrow, I'll be going down the other side of the hill and having reached the top with feeling about as well as could be expected, I'm looking to finish all 12 cycles by Jan 1st.

One small step for those not afflicted, one GIANT step for those in the know and who have been there, or know someone who has been there.
I don't know why I'm ramblin' on....must be the chemobrain syndrome?

HALFWAY is GOOD!!!

Thanks to all for your support.

Wednesday, October 1, 2008

October 1st already !

I had a bad night with fever, chills, sinus congestion, sore throat and muscle aches, along with a rash that developed again under my left arm. I'm using Niacin powder for the rash and pumped the recommended dosage of Tylenol for the fever.

Went to bed at 9:30pm last night and woke up at about 2:00am literally soaked with sweat. I had to get up and sleep (or what should have been sleep) in a recliner.

More Tylenol this morning (2 at 7:00am) and took one more at 9:30am as I was leaving for the clinic.

Bloodwork looked good and temp was 98.7 (normal), so they proceeded to inject me with Fluorouracil and then re-connected me to the portable pump of 5-FU and sent me on my way.

Still not feeling great or 100%, but glad that I was able to continue treatments!

Oh yeah, my friend Rob got an excellent report from his follow up colonoscopy and is now officially cancer free!

Tuesday, September 30, 2008

6th Cycle started (with modifications)

I arrived at the clinic and after having blood drawn, they took my temperature, blood pressure and had exam. I was running a slight fever of 99.5, if it is 100.5 I wouldn't have been able to start the cycle I was told.

I spoke with my oncologist and he suggested that we go ahead with the treatment, but he was going to not give me one of the meds that caused the neuropathy. He said that it would not prolong the treatments, as I've already got a good dose of the oxaliplatin running through my system from previous cycles.

Because of this, I didn't need the anti-nausea meds either :)

I asked him about a flu shot and he thought for a moment, then decided that it would be okay to get the vaccine today also. I have had a runny nose, sore throat and cough for the past couple of weeks, but it seems as if it peaked when I woke up this morning and I was worried that I wouldn't be able to get my tratment.

Everything worked out okay though and I get 14 more days to let the neuropathy subside. They hooked me up to the portable pump of 5-FU and I'll be back again tomorrow. I was also able to book my next cycle (my 7th) beginning October 14th.

Monday, September 29, 2008

Thoughts & Observations

First of all, my prayers are with a friend, a fellow musician/guitarist, who I've never met but has been a huge inspiration for me. I've been communicating with Rob for about four months now since my diagnosis. Today is his follow-up colonoscopy.

Rob, from the Detroit area, had a similiar diagnosis and went through the same treatment (Folfox) that I'm currently going through, but he also had radiation. He has now had his mediport removed and is cancer free and I'm hoping that he gets a good report today! This is the link to Rob's blog : (thanks again, Rob!)

http://rocamata.com/news.aspx

I'm starting my 6th cycle if all goes well. The "tingling" sensation (neuropathy) in my fingers is not subsiding as in the past. It seems that many of the side effects are a bit more intense than in previous weeks as well.

I know that the treatments have a cumulative effect and I expect that it's going to be a bit tougher to be comfortable from here on in. So far, there have been some tough stretches, but it's been tolerable for the most part.

The little things seem to be getting worse (i.e. headaches are bordering on migraine, the metallic taste of food and beverages are lingering longer, fatigue is more intense, nausea feeling is happening more often.)

When I do finish this next cycle, I will be halfway through my chemo treatment.

I can't stress enough to everyone that if you're due to get "the test" go and have it done. The prep for a colonoscopy is like having a cold beer compared to going through chemotherapy!

Thursday, September 18, 2008

Finished 5th cycle today !

It has been a trying week, but today's treatment finishes my 5th cycle and I was able to go ahead and schedule my next cycle for the week of September 30th - October 3rd, 2008. After this next week of treatments, I will have half of my treatments completed.

I heard from one of the oncology nurses that a new anti-nausea patch has recently been approved by the FDA...

http://ap.google.com/article/ALeqM5jzTSB0ffFGHcV9CLa5kt8sTg3LGgD937BU4O0

There are always new meds, methods and treatments coming along to help those afflicted by this horrible disease.

All went pretty good today. The senna is helping with digestive issues more and the redness in my face is from the prednisone which is part of the anti-nausea IV that I currently get at the beginning of each cycle. They told me to keep on the B-Complex and Folic Acid and it would help with neuropathy, but won't take it away. I'm getting used to the routine and know to use gloves and dress in layers when necessary.

Wednesday, September 17, 2008

Nausea feeling

For the first time since beginning chemo, I woke up early this morning with a feeling of nausea. I didn't throw up, but just feel kind of sick.

Maybe this is an indication that it's going to start getting a little harder and uncomfortable or maybe just a "bug" I might have picked up from some of the other patients yesterday? Some of them were coughing pretty steady and not looking too well.

I didn't take anything because today's session is just a short session of about 2-3 hours of leucovorin and fluorouracil and I think I'll be okay.

http://www.chemocare.com/bio/leucovorin.asp

Tuesday, September 16, 2008

5th Cycle Started

I had my bloodwork done and the pathology reports indicated some low levels, but still in range, so I began my 5th cycle today.

As soon as I got home, I reached into the fridge without a glove (I forgot how quick that Oxaliplatin works!) and it felt like my hand was on fire.

I was told to use folic acid and b-complex again for the neuropathy. I questioned about it contributing to the constipation problems, but was told that it wouldn't by a physician's assistant oncology nurse. I DO have some b-complex w/folic acid, but I'm going to try upping my fiber intake, metamucil and sugar-free Jolly Rancher hard candies with "Isomalt" and see if that helps any. I also heard that "Sucrose", another ingredient in sugar-free candies might help.

My doctor said to use the sennecot (vegetable laxatives) if nothing else worked. He feels that it is caused by the anti-nausea meds that I get through the IV and asked if I was using the prescribed anti-nausea meds (zofran & compazine...I'm not). I'm hesitant about using laxatives because I don't want to get dependent on them. I'll see how things work out (no pun intended) during the week.

Tuesday, September 9, 2008

Chemo Side Effects

This is my off week to let the body 'recycle' and I'm finding that the side effects from last week's 4th cycle treatments are a bit more nastier and sticking around for a longer period.

The side effects that I'm experiencing are Neuropathy (cold sensitivity and tingling/numbness in fingertips), Constipation (laxatives aren't even helping much), Fatigue, Mouth Sores, Headaches, Bloody Noses, Skin Welts and an aching feeling all over. I have no fever or nausea though. I picked up some Vitamin B-Complex w/Folic Acid to try and help heal the immune system and I'm upping my fiber intake.

In the past, I've been able to tolerate cold drinks with ice and/or ice cream after about the fourth day when the treatments ended. This time, it's been four days and I'm having problems just reaching into the fridge.

I haven't had to take any of the zofran or comparazine (for nausea), so I think it's just the chemo meds coupled with the anti-nausea IV that I get? At any rate, I'll discuss with my oncologist when I go in next week.

Friday, September 5, 2008

4th Cycle Complete (1/3 of the way)

I started and finished my 4th cycle of the Folfox treatment this past week and for the most part it went well. My next milestone will be finishing my 6th cycle (the halfway point) which should occur in early October is no setbacks.

The week started with a little bit of a pinch when the oncology nurse inserted the needle into my mediport, but I was able to whisper to the oncology nurse whose technique from last cycle gave me NO pain at all (zilch!) and she said that she would make a point to look for me to do the "poke in the port" on my next scheduled cycle start. I told her that I don't know how or what she did, but she has been the only one so far, to insert it with no pain at all.

As for the chemo, it was the same routine, a long first day with the infusion and sent home with the pump of 5-FU, then a little shorter on the second day with the IV and then more 5-FU in my holster pump to infuse overnight until I got in today for the exam and disconnect, where they flush the port with saline and give it a heparin lock.

I had an early appointment today, so I was out by 10am and had a nice breakfast (with hot coffee and not my favorite iced coffee) with my sister, Cathy, who recently had her colonoscopy. Even though they only found and removed one polyp, her doctor wants to see her in a year, due to my situation (sibling/family history?).

It got very hot and humid over the past 2 days, but all in all, it's been a cool August and the heat isn't bothering me like it did during July.

I can't stress enough to get yourself checked (scope) because it is a LOT easy than having surgeries and chemotherapy for six months. Early detection is a key factor and I truly believe that it is what saved my life along with the help of God!

Tuesday, August 26, 2008

The Power of Positive Thinking

One of my cousins, an R.N., had sent me this and I wanted to share it here for those who may find some comfort in learning more about the power of positive thinking...

1. We all work with one infinite power

2. The Secret is the Law of Attraction (LOA)

3. Whatever is going on in your mind is what you are attracting

4. We are like magnets - like attract like. You become AND attract what you think

5. Every thought has a frequency. Thoughts send out a magnetic energy

6. People think about what they don't want and attract more of the same

7. Thought = creation. If these thoughts are attached to powerful emotions (good or bad) that speeds the creation

8. You attract your dominant thoughts

9. Those who speak most of illness have illness, those who speak most of prosperity have it..etc..

10. It's not 'wishful' thinking.

11. You can't have a universe without the mind entering into it

12. Choose your thoughts carefully .. you are a masterpiece of your life

13. It's OK that thoughts don't manifest into reality immediately (if we saw a picture of an elephant and it instantly appeared, that would be too soon)

14. EVERYTHING in your life you have attracted .. accept that fact . it's true.

15. Your thoughts cause your feelings

16. We don't need to complicate all the 'reasons' behind our emotions. It's much simpler than that.
Two categories .. good feelings, bad feelings.

17. Thoughts that bring about good feelings mean you are on the right track.
Thoughts that bring about bad feelings means you are not on the right track.

18. Whatever it is you are feeling is a perfect reflection of what is in the process of becoming

19. You get exactly what you are FEELING

20. Happy feelings will attract more happy circumstances

21. You can begin feeling whatever you want (even if it's not there).. the universe will correspond to the nature of your song

22. What you focus on with your thought and feeling is what you attract into your experience

23. What you think and what you feel and what actually manifests is ALWAYS a match - no exception

24. Shift your awareness

25. 'You create your own universe as you go along' Winston Churchill

26. It's important to feel good ( ( ( (((good))) ) ) )

27. You can change your emotion immediately .. by thinking of something joyful, or singing a song, or remembering a happy experience

28. When you get the hang of this, before you know it you will KNOW you are the creator

29. Life can and should be phenomenal .. and it will be when you consciously apply the Law of Attraction

30. Universe will re-arrange itself accordingly

31. Start by using this sentence for all of your wants: 'I'm so happy and grateful now that.... '

32. You don't need to know HOW the universe is going to rearrange itself

33. LOA is simply figuring out for yourself what will generate the positive feelings of having it NOW

34. You might get an inspired thought or idea to help you move towards what you want faster

35. The universe likes SPEED. Don't delay, don't second-guess, don't doubt..

36. When the opportunity or impulse is there .. ACT

37. You will attract everything you require - money, people, connections.. PAY ATTENTION to what's being set in front of you

38. You can start with nothing .. and out of nothing or no way - a WAY will be provided.

39. HOW LONG??? No rules on time .. the more aligned you are with positive feelings the quicker things happen

40. Size is nothing to the universe (unlimited abundance if that's what you wish) We make the rules on size and time

41. No rules according to the universe .. you provide the feelings of having it now and the universe will respond

42. Most people offer the majority of their thought in response to what they are observing (bills in the mail, being late, having bad luck...etc..)

43. You have to find a different approach to what is through a different vantage point

44. 'All that we are is a result of what we have thought' - Buddha

45. What can you do right now to turn your life around?? Gratitude

46. Gratitude will bring more into our lives

Thursday, August 21, 2008

25% or 1/4 Mark

I had a good day today at the chemo clinic. They examined me and went over my bloodwork pathology and told me that I don't need to come in next week.

They flushed the mediport with saline and a heparin block, then dis-connected me from my portable infusion pump and took the needle of the port. This is one of the greatest feelings during my chemo journey!

I was told that everything is looking good to continue treatments in two weeks. I went to book my next cycle and it happened to be September 2nd, the day after Labor Day and completely booked, so I had to go with September 3rd, 4th and 5th. This will be a Wednesday, Thursday, Friday, but I got all three day's appointments at 8:40am.

The nurse practitioner told me to enjoy the fine cooler weather and by Sunday, the neuropathy and metallic taste should be weak enough to be able to enjoy an ice cream or a cold beer. Hmmmm ???

Wednesday, August 20, 2008

Smooth sailing again...

I had my second treatment today of cycle 3 and all went well. My oncologist asked me if I've noticed my face being red (as it was today) and I told him that it always seemed to have a "sunburned" look for the first few days after the Oxaliplatin. He said that we'll just keep an eye on it.

While there in the infusion room, I met another guy about my age who is finishing his 12th cycle this week. He was also a stage III colon cancer patient. He is so happy to have made it and told me that week 10-12 were "very trying" but he could see the light at the end of the tunnel and he strived to make the last 3 cycles and finally made it. He said that the neuropathy was pretty intense in his feet, but not so much his fingers. I wished him well. He finished his treatment before mine and left. It was good to have someone to talk to that I could relate to for a short time today while being infused.

It's not a big deal though, I read or listen to mp3's, or sometimes just close my eyes and rest. It is an extremely busy clinic, but all of the doctors and nurses are very good to work with and offer advice and answer any questions that anyone has.

Tuesday, August 19, 2008

Back on Track :)

I was able to resume my chemotherapy treatments today. My bloodwork was "in range" and I've started my 3rd cycle. I was extremely happy to hear the news from my oncologist.

I didn't even feel any pain when the oncology nurse put *the needle* in my port today either. Maybe I was so happy to be back on track that I put a mental block around it?

Anyway, right now my fingers are tingling pretty good and this is taking way more time to type than usual so I'm keeping it short.

No nausea, just neuropathy and fatigue.

I have my portable pump of 5-FU infusing me now until I go back tomorrow. I like when the first day of each cycle is done. This is the day I get the oxaliplatin along with others. The other chemo meds seem very tolerable so far. Won't need the Oxal again now for two weeks :)

Wednesday, August 13, 2008

Treatments postponed until next week

I went in this morning and my platelet count had come up some, but my white blood cell count was down, so the on-call oncologist requested some tests (more bloodwork) to see if there was an underlying cause.

The doctor said that usually they see these kind of numbers after a patient's 5th or 6th cycle and it is unusual to see after only two cycles. So, he is recommending to my oncologist (who is away this week) that the chemo dosage be dropped to 80% and will have the "extra" test results back next week as well.

I had a hunch that it would be postponed and didn't even put on any of the numbing cream (lidocaine).
So, I'll finish this week with the antibiotic for the infection and hope for a better week, next week.

Tuesday, August 12, 2008

Treatment Delayed today :(

I wasn't able to continue treatment/infusions to day because of
1.(infection/blood ozzing from incision above port) and
2.(platelet count was low).

They sent me back to the interventional radiologist group and the doc cleaned, sutured and dressed the infected/open incision area. Only stings a little bit.

So, I go back tomorrow morning for bloodwork and see if they can proceed with the treatment.

I knew it was too good to be true, I had finally got an early appt for chemo today and wasn't able to get the infusions. The first day of the folfox treatment is the longest and I was hoping to get in and out by around noon time. Oh well, I can only trust that my oncology team (and I say "team" because my oncologist is away this week and he runs the oncology dept/clinic) is making the best decisions for me.

Sunday, August 10, 2008

Infection !

I'm still hoping that this won't prevent me from starting my 3rd cycle of chemo this week, but I woke up this morning with a moderate burning sensation in my chest. After getting up and looking, it appeared to be a bacterial-type infection of some type overlapping the area of my mediport incision and about the size of a quarter.

I called my oncology group and the on-call doctor called in a prescription of oral Dicloxacillin 250mg capsules. Dicloxacillin is indicated for the treatment of infections caused by susceptible bacteria.

I'll speak with my oncologist in the morning and see if he wants me to come in immediately to look at it or wait until I go there for my regular appointment on Tuesday morning at 8:30am. I'm really hoping that I won't need to re-schedule and prolong the treatment plan. I want to get this done by the end of the year,

Thursday, July 31, 2008

Second Cycle - Finished !!!

I went for my bloodwork and pathology today and it looks very good I was told. I'm feeling pretty good about that and not sweating the minor side effects that I've had because they've been very tolerable so far.

My exam went well also with excellent blood pressure and no problems with infection, the mediport or any other symptoms. My oncologist said that I was doing so well that I can have next week off !

I had my mediport flushed/cleaned and was "un-hooked" from the portable pump of 5-FU and sent on my way...feeling pretty good I might add :)

On a side note, one of my cousins who is a nurse at another medical center sent me this link. You might have heard about the main author ? She has helped many to not just survive, but to eradicate their cancer : (Thanks Cheryl!)

http://www.amazon.com/Heal-Your-movie-expanded-version/dp/B000Y04R96/ref=pd_lpo_k2_dp_k2a_2_img?pf_rd_p=304485601&pf_rd_s=lpo-top-stripe-2&pf_rd_t=201&pf_rd_i=1561706280&pf_rd_m=ATVPDKIKX0DER&pf_rd_r=16RD3F8NJQ8E787V10ST

Happy Birthday Dad and tomorrow is my wife, Anne's Birthday :)

Wednesday, July 30, 2008

Day 2 - Second cycle of chemo

Today went pretty good. I asked about the neuropathy side effect (mainly cold sensitivity so far) and was told that Folic Acid and Vitamin B Complex should help with that, so I'll be picking some up.

Mainly just tired, but restless-type tired, if that makes any sense. My face got really red and my wife noticed it when she came home today, but I feel okay and temp is normal.

I met an interesting woman who I chatted with for quite a while. She seemed very wealthy and spoke of her home in Franklin with two horses which she absolutely adored. She has been going for a year and a half for stage IV breast cancer, but looked like she was tolerating it well and seemed to speak coherently.

I prefer the morning appointments much better than the late afternoon ones and hope that I can book more earlier ones from now on.

Tuesday, July 29, 2008

Began 2nd (of 12) cycles today

Today was a pretty good day. My oncologist thinks that I'm doing well so far (at least he told me that). The pathology indicated that white and red blood cell counts and platelets were good.

One of the oncology nurses stabbed me with "the needle" into my mediport. The lidocaine/prilocaine mix didn't seem to help with that pain :(

She then told me that it was because I had tissue behind where the port was located and that some people don't have and they don't feel a thing. I'm not sure if I buy that, but still feel that the mediport is the way to go for anyone going through chemotherapy.

I got the anti-nausea meds first, then Oxal/LV, a short infusion of 5-FU, then was hooked up to the pump filled with 5-FU.

The nurse covered the port dressing with a big chunk of a very sticky bandage. I made it as far as the first floor, before I had to go into the restroom and use some cold water to peel back one of the sides that was pinching the hair on my chest with every little move that I made.

I got home and started to nap, then my good friend, brother-in-law and former bandmate stopped by to let me borrow his copy of Clapton's Autobiography which his daughter had got for him. (Thanks Ed and Kelly!)

Lots of family birthdays this week too. Happy Birthday to my Father, and Tom, my brother-in-law, and especially to my wife, Anne.

Tuesday, July 22, 2008

July 22, 2008 - Checkup

It continues to be warm/hot and very muggy, but I'm getting used to room temperature foods and beverages (part of the neuropathy side effect). I suppose that it could be much worse.

I went for my bloodwork and checkup today at the oncology clinic (this is an "off week" = no infusions) and I had been scratching my left side for a couple of days. The doctor noticed that I had developed some kind of rash that looks like the beginning of hives on my upper left chest and continuing under my armpit to some areas on my back. They said that it could be related to the platelet counts or maybe just a heat rash.

At any rate, they gave me a prescription for nystatin to apply three times a day. They also told me to call if it spreads or gets worse. If all goes well, I'll start my second round of chemo next Tuesday. They didn't want to schedule anymore appointmens until they see how I do on the three days of infusions next week.

Friday, July 18, 2008

Chemobrain

A few of the patients were talking yesterday about something called "chemobrain" which they were experiencing, so I googled it and found this -

What is chemobrain?

The terms "chemobrain" and "chemofog" refer to cognitive changes during and after cancer diagnosis and treatment. Though these terms imply a relation to chemotherapy, it isn't clear that chemotherapy is responsible. What is clear is that some people with cancer do notice increased difficulties with certain mental tasks during and after cancer treatment.

In general, researchers have found that chemotherapy can affect your cognitive abilities in the following ways:

Word finding. You might find yourself reaching for the right word in conversation.
Memory. You might experience short-term memory lapses, such as not remembering where you put your keys or what you were supposed to buy at the store.
Multitasking. Many jobs require you to manage multiple tasks during the day. Multitasking is important at work as well as at home — for example, talking with your kids and making dinner at the same time. Chemotherapy may affect how well you're able to perform multiple tasks at once.
Learning. It might take longer to learn new things. For example, you might find you need to read paragraphs over a few times before you get the meaning.
Processing speed. It might take you longer to do tasks that were once quick and easy for you.
About 20 percent to 30 percent of people undergoing chemotherapy will experience cognitive impairment, though some studies report that at least half the participants had memory problems. Changes in memory during and after treatment may be very subtle. You might notice changes during your everyday tasks and as you start working again after treatment. The memory changes are often so subtle, in fact, that researchers find that people who report having memory difficulties tend to score in the normal ranges on tests of their cognitive ability. That makes it more difficult to understand, diagnose and treat the memory changes.

What causes the memory changes?

Doctors don't know what causes the cognitive changes associated with chemotherapy. It was previously thought that chemotherapy drugs didn't enter your brain, but were kept out by the blood-brain barrier, which separates chemicals that should be in your brain from those that shouldn't. But some researchers now suspect some chemotherapy drugs may be able to slip past the blood-brain barrier. This could potentially affect your brain and your memory.
It isn't clear which chemotherapy drugs are more likely to cause memory changes or if higher doses pose a bigger risk than do smaller ones. And it isn't possible to predict who's more likely to have cognitive impairment after chemotherapy.
A number of factors can cause temporary memory problems in people undergoing chemotherapy — making it difficult to identify the so-called chemobrain from the normal stresses of treatment. Temporary memory problems can, for the most part, be treated. Causes include:
Low blood counts. If your blood counts are low, you might feel tired, making it difficult to concentrate.
Stress. Being diagnosed with cancer and starting treatment is stressful. Stress also makes concentrating difficult.
Medication to treat side effects. Certain medications for treating side effects including nausea and vomiting may cause drowsiness. When you're tired, it may take longer to complete tasks.
Lingering depression. Depression is common in people with cancer. If your depression continues after your treatment, you might find it difficult to pay attention.
Lingering fatigue. Fatigue is a side effect of several types of cancer treatment, including chemotherapy. Your fatigue might end when your cancer treatment ends, though it also can continue after treatment.

"Cancer is hard...getting help shouldn't be."

Thursday, July 17, 2008

First week of chemo is finished !

I had a later appointment today and noticed that my portable pump started occasionally beeping about three hours before my scheduled appointment. I called the clinic and was told that it was beeping because the dosage was getting low, but after being asked and reading what was left, the nurse told me that there would be enough to last until I got there.

In driving to the clinic, I noticed that it was down to only 002, then 001 when I walked into the building. I had just sat down when it started beeping and didn't stop and the nurse came over and took the battery out of it and said "you're done." She then "unhooked me" and flushed the port and said I was good to go.

Before leaving, I spoke with my oncologist and was given some samples of Senokot, to help things move, so to speak. Other than that, I've had no nausea or feeling sick at all, just some mild sensitivity to cold beverages and food and some minor tingling in my fingertips, but very tolerable at this point.

I can only hope that every week goes as well as this, but I'm a realist and trying not to get ahead of myself and will take things as they come. I've learned that life IS a gift and you must stop and smell the roses when you can.

Wednesday, July 16, 2008

2nd Day of Chemo (First week session)

Since my treatment plan (Folfox) is a 3-day every other week curative approach with just bloodwork done on the off-weeks, after this week, I will only be posting one weekly update unless there are some unanticipated issues that come up that I feel might help someone who is reading this blog because they have or know someone in the same situation.

Today went pretty well and not quite as long because they only did the sign-in bloodwork and then about a two-hour transfusion of Leucovorin followed by a quick injection of 5-FU and refilled my holster-pump of 5-FU which will be injected over the next 22 hours again.

I had a little bit of neuropathy side effects (cold sensitivity) to ice cream and beverages with ice, so will keep an eye out for that. One of the oncolgy nurses said that by Saturday, it might not bother me as much? They had told me that the 5-FU would/could cause diarreah, but so far it hasn't, although I may get constipated from the anti-nausea meds they told me. Mostly the combined major side effect I'm feeling is fatigue and chemobrain.

Tuesday, July 15, 2008

First Day of Chemotherapy

Today went pretty good. I got there at 10:00am and had bloodwork, then went up to the fourth floor and was examined by my oncologist and he looked over my bloodwork results. He thought that my right side looked a little "puffy" and decided to not take the strips off the port yet.

Then I went into one of the three infusion rooms and I'm glad that I wore long pants and a long sleeved shirt (even on this summer day). One of the oncology nurses took me aside and inserted the needle into the mediport. It pinched a little, actually a lot! She suggested I use a mixture of Lidocaine/Prilocaine 2.5% each and I picked up the presciption on my way home. I'll use the numbing mixture in 14 days when I begin the second treatment session.

Other than that, things went very well. First I was given a double drip IV of two anti-nausea meds, (Aloxi and Decadron), which took about an hour or so. After that I was given another double IV drip of chemo drugs (Oxaliplatin and Leucovorin) for about two hours. I was able to eat a little food and felt okay after this was done.

Lastly, the gave me a short injection via IV of 5-FU (Fluorouracil) and "hooked me up" to a pump of the 5-FU which will continually inject me for 22 hours. I really don't feel too bad right now aside from a little fatigue, but will have a nap and watch the MLB All-Star Game tonight. I'm picking the American League to win!

Stay tuned as things progress...day 2 starts at 10:30am tomorrow.

Tuesday, July 1, 2008

Mediport Surgery

I was a little surprised to find out that my surgeon wouldn't be doing the mediport implant, but rather a trained radiologist. I believe that the proper title is an interventional radiologist.

At any rate, it was about a 90 minute procedure where I received two incisions. One was a small one where the catheter (tube) connects to a vein near my collarbone and the other was in my upper right chest where they put in a Bard dual chestport.

I have to keep a Medical Alert card with me now that explains that I have this implanted port with catheter in me. It gives the product code, lot number, where located, date of implant and three procedures for flushing/cleaning depending on the use of it. It can only be accessed with non-coring needles.

So, at this point, I'm ready to begin chemotherapy in on July 15th and I'll update this as I go along or have my wife write some of the updates.

Monday, June 30, 2008

Oncologist

About a week after being discharged from the hospital, I returned to the surgeon's office and had the staples removed. We then talked about oncologists and I was referred to the chief of oncology at a nearby, hospital-affiliated clinic.

I met with the oncologist and was told about the diagnosis and treatment which he strongly recommended. I was also examined and had many questions answered.

My diagnosis was stage 3 colon cancer and the plan was to hit me hard for six months with chemotherapy. He told me that the surgeon had removed the malignant tumor and twenty six lymph nodes, of which only three had cancer cells in them, but because it had spread that far, I was staged as a 3.

The treatment plan is a curative one and is called "Folfox". It consists of Oxaliplatin, Leucovorin and 5-FU. He also said that I should have a "mediport" implant which would save me from a lot of needle pokes in my arms. An appointment was made for a "chemo training session" and the chestport surgery.

Saturday, June 7, 2008

Hospital Stay

The hospital stay started out with some problems. My left leg had gone numb from the ankle to my thigh, but I could wiggle my toes, as the nurses asked, so it wasn't until they tried to have me move a bit that I discovered that my leg was numb. They tried to reduce the dosage of epidural but it didn't help, so eventually the put me on a different pain med (Dilauded) with a pain pump.

This caused me to lose a day and a half in the recovery process, as I couldn't stand for two days. I also had a bladder tube and a tube in my nose and stomache. My surgeon was in to see me every morning and evening while I was in the hospital.

I eventually got up walking and pushing my IV stand around the corridors while holding a pillow against my abdomen (as it felt like my guts were going to fall out!). The hospital staff was very helpful during my stay but after four days, I really wanted to get out of there.

I had been on the IV and only ice chips after that, so it was a real treat to have some toast and juice on the fifth day for breakfast. Soon after I ate, my surgeon came in and asked me if I wanted to go home. I said that I did as long as he thought I was ready. he said that I've been walking, had bowel movements and had eaten and felt that I could be discharged.

My wife came and picked me up with a prescription for oxycodone and discharge instructions. One of the nurses had me sit in a wheelchair and took me to the pickup area. It was about 95 degrees outside, but I felt no pain.

Tuesday, June 3, 2008

Surgeon and Surgery

We met with the surgeon, who was highly recommended, and discussed my situation. It was agreed that the sooner the better. I had a date for the pre-op and surgery in a matter of a few days.

The pre-op seemed standard procedure (bloodwork, blood pressure, lots of questions, etc) I had to start the "cleansing" that same day (I had just done this for the colonoscopy about a week ago, so I knew the routine). I then got my pre-admission instructions for surgery.

The next day we arrived at the hospital at 9:00am and registered. I was then eventually moved into the pre-surgical area to be hooked up to IV and vital signs taken, etc.

The surgery began about 10:00am and lasted until 2:30PM. They were waking me up as they were moving me to a recovery room where I was held for another two hours. I had severe chills and some discomfort from an epidural I was given along with the anesthesia and was wrapped in warm blankets.

The surgeon was able to perform the resection and told me that everything went fine. I was admitted and moved into a hospital room a little while later.

Wednesday, May 28, 2008

Radiology Reports

My wife and I met with my primary care doctor after the holiday weekend and we were given printouts of the radiology reports and we discussed what the next steps would be.

The findings were that, indeed, I did have sigmoid adenocarcinoma and the tumor and some lymph nodes would need to be removed by a surgeon.

The reports also indicated a couple of minor incidentals, but were thought to be nothing to worry about and we were referred to a surgeon.

Tuesday, May 27, 2008

Primary Care Doctor

It was not a very good weekend for me or my family as we didn't know what would be happening next. We had an early appointment with my primary care Doctor first thing after the holiday weekend.

He gave us printouts of the radiology reports and discussed what was probably going to happen next. The reports indicated that indeed I did have Sigmoid Carcinoma and would need surgery and then some kind of chemotherapy.

The findings on the reports also indicated that I had "moderately severe descending diverticulosis" and that some lymph nodes showed signs of possible cancer. There was also mention of some incidentals that showed some FDG uptake in my tonsil pillar area believed to be scar tissue from a very old surgery (tonsilitis) and a low density lesion in the liver was probably a hepatic cyst and no focal lung, liver, spleen, pancreas or adrenal FDG uptake.

I was then referred to a surgeon and oncologist.

Friday, May 23, 2008

PET and CT Scans

Within a few days, I was back at the hospital's radiology department for the subject scans. Approximately one hour after drinking something to help show certain areas in the scans, I was brought to the scanning lab.

The equipment used for the scans was very similiar to an MRI machine. For one of the scans, I was given an IV of F-18 FDG for imaging procedures.

This was right before the big Memorial Day (summer kickoff) weekend and I was told that the reports would be read by the next morning.

Tuesday, May 20, 2008

Colonoscopy

I had a colonoscopy in late May, 2008. When it was over, I asked the nurse while she was taking out the IV if everything went okay. She told me that I "might" need a little surgery and the Doctor would be in to speak with me.

In a few more minutes, my wife and the Doctor came in and he told us that he saw a mass (tumor) that was too risky for him to even try to take out and recommended surgery. He said that he had biopsied it, but he has seen enough of these to believe that it is cancer.

He went on to say that we needed to act fast on this and immediately had his office arrange for PET and CT scans. He also put a "clip" on it, so the surgeon could tell exactly where it was located (in my sigmoid colon).