October is here - Next cancer testing this month !!

So...here we are into October already! I chose the video clip of some
foliage because we won't be seeing much this year due to Hurricane Irene's
visit.

I'm now into my sixth decade or past the years of fifty somethings or if you're
still confused...I turned 60 years old last week! There have been some times in
my life when I never thought that I would make it to see this happen, but I did and I'm very thankful.

My next checkup at the cancer center is scheduled for October 31st which happens to be Halloween. I'll have bloodwork done, an exam and hopefully get my flu shot while I'm there too.

As my third year of remission is coming to a close, I'm finding less things to write about, but will try to keep it interesting none the less. As many of you know, October is Breast Cancer awareness month (you've seen the pink ribbons and decorations around maybe?) and I hope that all of you are still tolerating your treatments well and doing okay. It is indeed a horrible disease, as is any form
of cancer, but that is why we must have faith, hope and trust in our medical professionals and to God above. I'll be keeping you all in my prayers and thank
you all for the emails and support that you've been giving me. It really does help and it means a lot. THANK YOU!!!

It's June and 55 degrees F ???

It must be because the Bruins are still playing hockey and tonight is game 7 of the Stanley Cup Final Playoffs!

We've had a few stretches of hot and hazy weather, but it's nice to get a break from the heat every now and then. I can recall when I was starting chemo three years ago and the wicked heat we had. I used to wear long sleeves and cover with a blanket during my infusions. Those chemo meds
work well, but the side effects included neuropathy and feeling cold very easily.

At any rate, we're hoping for a Bruins victory tonight and then looking
at a warm summer season....eventually! For those of you who are going through chemo right now, may God bless you as He has blessed me!!!

Edited to add - The BRUINS won!

2011 - More Snow

Well, the holidays are behind us now and 2011 came in with a powerful
nor'easter on January 11th and 12th. Some of the weather people were calling it 'Thundersnow' - - we called it an old fashioned blizzard!

I have two years in remission now and have my next series of tests
and CT scan tentatively scheduled for the last week in April. Maybe
by then all of the snow will have melted ;)

I'm feeling pretty good for the most part but still a bit of lingering neuropathy is noted especially in the cold weather. It's mainly the fingertips and toes of my feet. Compared to what it was like while going through chemotherapy, this is very mild and just a nuisance.

I'm still taking my daily vitamins and D supplements and was doing pretty good as far as losing some weight until the holidays hit - - but now it's back to the excercises and treadmills and hoping to 'lighten up' a
bit and get back to following the glycemic index more faithfully.

The Glycemic Index

Today I had my follow-up with primary care doctor and we reviewed
my lab reports. (see last post).

I was told about the Glycemic Index and how I would have to
learn to use it and start walking/exercising on a regular basis.

He showed me my chart and how I was able to get the numbers
down a few years ago through diet and excercise and we agreed
that I should be able to do it again.

Regarding the vitamin D deficiency, I'll be starting on 1,000 i.u.
of vitamin D on a daily basis for three months or whenever I'm
tested next (he suggested late January or early February).

So, he's diagnosed me as 'Glucose Intolerant' which is very
similiar, if not the same thing, as pre-diabetes.

I've got to work on cutting out sugars, carbs and all the good
stuff that I've been eating since my chemo treatments ended.

Next month is more testing/screening with my oncologist and
we're still not sure what we'll have for healthcare come the
first of the year.

Annual Checkup - Physical

I got my lab reports back from the hospital and my blood cell counts are good, along with a few other things (good blood pressure, cholesterols, etc) but it shows some vitamin D deficency (chemo might have been a cause?) and an A1C Blood Sugar level that was off the charts. I got a 7.0 and the normal range is 4.7 to 6.1. So I've got to eleminate sugars and some of the things that I've been eating along with getting a little more excercise.

Hemoglobin indicates high risk for cardiac problems and they also reported a *trace* of protein in urinalysis which was circled as abnormal. I've already started on my new lifestyle changes (diet and exercise) and I have a follow up appt next week to review with my primary care doctor.

Next month starts the series of cancer screening again and I suppose I'll get a flu shot while I'm there. Stay tuned!

September & Hurricane Earl

Here we are on September 3rd. The heat and humidity are still with us but the rain and winds from a now downsized Hurricane Earl should cool things off soon.

I had my annual checkup and exam with my primary care doctor and it went well. I'm awaiting the results of the bloodtests and labwork. He suggested a pain management program for my arthritis since chiro manipulations are not helping, but with our
health coverage and provider changing soon, I've decided to hold off until we see what will be covered.

My next series of oncology visits are next month and I'm hoping for good results but you always have that feeling about if this is going to be the test that shows recurrence at all. Still, I remain positive in my thoughts and thank God that I've made it this far after the diagnosis. It's hard to believe that just two years ago I was into my 3rd month of chemo (folfox) treatments.

Clear PET Scan

Just got home from oncologist visit. They drew blood for another CEA test and
then I had exam by my oncologist. He then told me to put on my shirt and come into
his office. (I thought it strange since he hadn't mentioned results after I told him
that I felt good about Monday's scan.).

My wife was with me and we sat in the chairs in front of his desk while he was
reading the report. He said that the scan was 100% clean! Then went on to say that
they still want to monitor me for 5 years since the chemo started and June will be
two years.

We told him about how our health insurance has changed and we now have to pay 20% of
all "allowed charges" for tests, xrays, scans and even bloodwork. He said that instead of another CT scan in six months (October), I'd just have CEA bloodwork and perhaps just a CT scan next year. Then I told him that I knew of someone that has only had CEA tests since finishing chemo and his response was that different doctors treat patients different ways. I "almost" brought up the fact that I read about doctors ordering unneccesary tests, but bit my tongue and kept quiet.

So, overall I'm happy that everything is fine but I'm still
wondering if the scans are really necessary.

Have a great weekend!
God bless us all!

Happy New Year - 2K10?

Well, now the question seems to be what do we call it? Is it 2 thousand 10, or twenty ten...I've decided to call it 2K10 (4 easy keystrokes!).

It's hard to believe that it's been one year now since my chemotherapy treatments have ended. It feels great too! Of course, I'll still need the routine CEA tests and PET/CT scans, but the feeling of having that mediport out and not having the needles and carrying the pump around is a great feeling...and I'm very thankful.

I hope that your new year is off to a good start and best wishes in 2K10!!!

The Holiday Season

The seasons are changing again. We just had Thanksgiving and in only a few more weeks we'll be into the Christmas week, followed by New Year's and 2010.

Two Thousand Ten...sounds strange, but time does keep ticking and waits for nobody. It's a particuliarly memorable time for me because at this time last year I was entering my final month of chemotherapy.

Aside from some stubborn neuropathy in my feet, I'm doing well and will be going in for my next PET scan in April. Winter 'could' be over by then if we're lucky!

Season's Greetings!!!

A Day In The Life

I now have my dates for my scans!!! I'll be going into the hospital in Mid-to-late May for the scans and then have the followup with my Onclogist a week later. At this point I'm continuing to let the body heal from the toxic chemotherapy meds and feeling a little better with each passing day.

Now comes the waiting...as it's been said "the waiting is the hardest part" to find out if the chemo did what it was supposed to do. More later...

First Follow-Up Today

I just got home from my 1st chemo follow up and it went pretty good. My bloodcounts are better, but still on the low side.

I told my oncologist about the tightness in the chestport area, the ongoing neuropathy and my short term memory loss problems. He said it's typical for a chemo patient after finishing the folfox treatment of chemo.

The tingling in my fingers is still pretty bad, but he said it might take from six to nine months before that goes away, but it WILL go away! They flushed the implanted mediport with saline and heparin (both sides - dual port) with both needles at the same time!

If I play guitar for a few hours, I have to skip the next several days because of the neuropathy in my fingertips from bending strings, so I play keyboards :)

So, my next follow-up is in 2 months, March 24th, then I'll have another two months from then and next will be be CEA bloodtests, scans and colonoscopy. All in all, he said that I'm progressing very well :)

Happy New Year

I'm hoping that everything will be fine in oh-oh-nine ;)

It's a great feeling to not have to go in for chemo treatments this upcoming week. I'll be going in on January 21st, for my first official "follow-up".

After that, they will continue to monitor my bloodcounts and bloodwork, flush/maintenance on my implanted mediport. It's a dual port Bard model, so that means TWO needles at once in the chestports (but NO chemo!). I refilled my prescription for the lidocaine today. I hope that I don't have to use it too often.

I'm feeling about as well as expected. I made the mistake of trying to clean some snow off a windshield without gloves and now I'm typing with one hand for a few days.
The neuropathy is probably the worst part, followed by the digestive tract "issues" and the occasional skin rashes and mouth sores, but it will now start to get better, although slowly, but I can deal with that.

I do hope that everyone enjoyed their New Year's Eve and best wishes to make it fine in 2009!

The Final Day of Chemo

What a day! I was really anxious to finish up today and was up at 5:00am even though my appointment wasn't until 10:35am. My wife took some pictures of me with the needle in the port and pump that I'll probably use as a dartboard eventually!

We brought in a cake and card and the staff was great and cuddled me with hugs and kisses...it was an emotional experience! To finish on Christmas Eve is quite a way to finish.

The neuropathy is still kind of bad, but I can deal with it. I have my first follow up in a month for bloodwork and port flush and we'll see where this journey leads after that.

Merry Christmas to all and Happy New Year!!!

2nd to last day of treatment :o)

I had my second to last treatment today and then they connected the portable infusion pump that I'm wearing for the last and final time!

It's so nice to be finishing my chemo rounds on Christmas Eve. Tomorrow when I go in, I'll be taking cards and gifts for the wonderful and professional staff that have been caring for me these past six months.

It's so hard to believe that it's finally going to be over, but it also seems like it didn't start all that long ago either. I'm feeling a lot more fatigue with this final round, but keeping in mind that it IS my final round.

Starting *Final* Round of Chemo

Today started off kinda bad, but ended a bit better because I wasn't going to let anything bother me during this final round of chemotherapy.

First of all, it started snowing here last Friday and didn't stop until last night and then a quick freeze settled in. With the gusty wind, it brought in windchills in the -10 to -3F range by this morning. So we got up early this morning to get a head start on a busy day.

My wife and I both got stuck from where the plow had dumped in front of our cars, so we were out there for quite awhile until we finally got both cars free from the snow. She left for work and called me when she got there to say that she made it okay and the highways were in much better shape. I then left for my chemo appt at 6:55am, even though I didn't have to be there until 8:00am. I was there by 7:30am and was able to get into the facility and wait until the staff showed up.

My white blood cell count was pretty low, but my oncologist said that it was within range and after discussing it with me, opted to continue without any delays. He also said that I've been a model patient (maybe he says that to all the patients?) and asked me if I'd be willing to talk with new patients that had some fear and/or concerns regarding the folfox treatments that I've been having. He said that a re-assuring veteran of the program could really calm a newer patient. Of course I told him that I'd be more than glad to speak with anyone that he wanted me to and I told him how my friend, Rob, is the main person that I, myself, had communicated a lot with when I was first diagnosed, and Rob has been a true friend throughout my whole journey and we still keep in touch via email, although we've never met due to the distance in where we both live.

Rob is now "cancer-free" and although I think I've posted his blog a few months back, here is another link to it :

http://rocamata.com/default.aspx

When I went into the treatment rooms, all of the other doctors and oncology nurses were coming by to wish me Merry Christmas and congratulations on finishing up this week. They are truly a great, professional and fun group and have really made it somewhat enjoyable (if that makes any sense?) to go through chemotherapy with.

Before leaving today, my oncologist spoke with me about the follow-up again and said it would about early summer (if all goes well) when I'd be having the mediport implant removed. I'll have to be monitored closely for a short period, then every 6-8weeks I'll go in to have both mediports flushed (it's a dual catheter port). After that some PET/CT scans and my follow up scope check. My bloodcounts are expected to recover slowly, but my immune system is low and I'm still at risk for catching infections from others while in the early follow-up stages.

So, day 2 tomorrow (Tuesday)of the treatments, they'll disconnect the pump then start the IVs before re-connecting the pump for the last time and on Wednesday (in 2 days) it will be out for good!

Now it's siesta time and I hope to wake up for the season finale of 'Prison Break' tonight.

Off - Week

I'm watching the *time* a lot this week!

This is my final "off-week" and I have a LOT to get done before starting my final treatment week next Monday!

The tingling in my fingers (neuropathy) is pretty bad and even trying to button a shirt is harder than usual, but I was warned of this and will manage to get past it somehow. The nerve damage is giving me some gastro tract *issues* as well.


I participated in our worldwide virtual band's 3rd annual Christmas song collaboration. We dedicate this year's song to the troops overseas and others who haven't been home for a long, long time. "Please Come Home For Christmas"

http://soundclick.com/share?songid=7148733

One step at a time, that's the only way and it has worked so far. Happy Holidays!

Next to last cycle

Today's chemo treatments went well. I'm at the point where even if they didn't go well that I don't think it would bother me because I'm being optimistic and focused on finishing this in TWO weeks from today. :-)

I didn't sleep well last night, which is usually the case after getting the eloxatin, but I snoozed for about two hours during today's treatments (and didn't snore, or so they told me?).

My doctor said that I was doing excellent with my white bloodcell counts and platelets counts and that leads to me to think (and hope and pray) that my treatments will end on Christmas eve.

I'll be starting follow-up in January, but the worst of it will be over very soon!

Round 11 (of 12)

Well, I'm into my ELEVENTH Round of chemotherapy now. My oncologist told me today that the neuropathy will probably still be evident for another several months. For that reason, they will be doing follow-up bloodwork, CEA blood tests, PET/CT scans and mediport maintenance.

It went okay today and some of the nurses came by to "remind" me that the end is near. It's nice of them, but I don't need to be reminded. I'm kinda/sorta at the point where I've had enough. It will be great to be disconnected for the LAST time and to eventually have the mediport taken out of my chest.

That said, I still don't want to get ahead of myself because any little thing can change the schedule and/or progress, which has been very good so far with only one setback that delayed treatment back around cycle 5 I think?

Christmas Time

"Tis the season...I'm trying to keep a positive outlook, but I haven't done much shopping for Christmas gifts yet and next week is my 11th cycle of chemo. Stress and anxiety are kicking in.

Many have told me that the last two cycles can be the toughest with the cumulative side effects of the oxaliplatin mostly. It's also getting a lot colder and I'm already wearing layers to keep warm.

The neuropathy, fatigue and digestive tract "issues" seem to be the worst, as they have been since starting chemo. I can't feel the little "bumps" on the "f" and "j" keys, so typing is slow and I have to keep going back to correct things.

I'm also trying to add my guitar parts to an annual Christmas collaboration project that I've been doing for the past three years now. This year's song is "Please Come Home For Christmas" and is dedicated to the military troops overseas and to others who haven't been able to get home for a long time. I'll post a link to the song when it's finished.

End of November

Chemotherapy is not cheap! I don't know how one without some kind of health plan could possibly afford it. The above is a sample of just my monthly visits/treatment bill. When you add in prescriptions, medical supplies and other items that you use, it can get quite expensive.


I hope that everyone had an enjoyable Thanksgiving with their families. I wasn't too hungry this year, but I had figured that would be the case with Thanksgiving being during a treatment week. Christmas is going to be during a treatment week also, but it will be my last cycle.

Tomorrow marks the beginning of December (the shortest daylight of the year month) and the weather is just starting to get cold, but so far no snowstorms. I'm looking forward to my upcoming 'off-week' and REALLY trying to keep away from crowds or anywhere that I could get sick due to my weakened immune system.