No sleep last night !

I'm not sure what they mixed in that anti-nausea IV that they gave me yesterday, but I slept for a few hours in the late afternoon, then was up until midnight, then I tried to go to sleep, but kept tossin' & turnin', so eventually got up and started playing piano with headphones on.

When I went for today's chemo, I asked my oncologist during my exam and he said it was just the usual anti-nausea meds IV. Then I asked the same question to the oncology nurse that I had and she said it might have been a little stronger with yesterday's dose but it ususally lasts about 3 days.

I took a "baby card" today to give to one of the Physician's assistants, who has been a great source of information and help since my starting chemo back in July, but she wasn't in and my oncologist said she called in with contractions. Her due date is December 25th, so we discussed it as maybe being new and first baby and possibly a false alarm? I guess I'll find out more tomorrow, but I left the card with my oncologist to give to her. I'll be back tomorrow, but she might not be? She had planned on starting her maternity leave at the end of this week anyway.

Today's treatment was the shorter one with just the port flush, unhook the IV lines from the portable infusion pump and connect me to the IVs on the stand. I took some very quiet Christmas music to listen to and felt myself sleeping and starting to snore once or twice, only to wake and open my eyes and see others staring at me. I apologized and told the group that I didn't get much sleep and to just kick my chair if it happens again. One gentleman said that it didn't bother him at all and snore away!

Anyway, finished up the leucovorin and saline, then my infusion pump was filled with 5-FU while they flushed the port and re-connected me to the pump and I was good to go. It really poured today, but it was warmer out. There were some vivid lightning strikes that we could see clearly overlooking Wellesley Hills along with a wind-driven rain.

6th Cycle started (with modifications)

I arrived at the clinic and after having blood drawn, they took my temperature, blood pressure and had exam. I was running a slight fever of 99.5, if it is 100.5 I wouldn't have been able to start the cycle I was told.

I spoke with my oncologist and he suggested that we go ahead with the treatment, but he was going to not give me one of the meds that caused the neuropathy. He said that it would not prolong the treatments, as I've already got a good dose of the oxaliplatin running through my system from previous cycles.

Because of this, I didn't need the anti-nausea meds either :)

I asked him about a flu shot and he thought for a moment, then decided that it would be okay to get the vaccine today also. I have had a runny nose, sore throat and cough for the past couple of weeks, but it seems as if it peaked when I woke up this morning and I was worried that I wouldn't be able to get my tratment.

Everything worked out okay though and I get 14 more days to let the neuropathy subside. They hooked me up to the portable pump of 5-FU and I'll be back again tomorrow. I was also able to book my next cycle (my 7th) beginning October 14th.

Began 2nd (of 12) cycles today

Today was a pretty good day. My oncologist thinks that I'm doing well so far (at least he told me that). The pathology indicated that white and red blood cell counts and platelets were good.

One of the oncology nurses stabbed me with "the needle" into my mediport. The lidocaine/prilocaine mix didn't seem to help with that pain :(

She then told me that it was because I had tissue behind where the port was located and that some people don't have and they don't feel a thing. I'm not sure if I buy that, but still feel that the mediport is the way to go for anyone going through chemotherapy.

I got the anti-nausea meds first, then Oxal/LV, a short infusion of 5-FU, then was hooked up to the pump filled with 5-FU.

The nurse covered the port dressing with a big chunk of a very sticky bandage. I made it as far as the first floor, before I had to go into the restroom and use some cold water to peel back one of the sides that was pinching the hair on my chest with every little move that I made.

I got home and started to nap, then my good friend, brother-in-law and former bandmate stopped by to let me borrow his copy of Clapton's Autobiography which his daughter had got for him. (Thanks Ed and Kelly!)

Lots of family birthdays this week too. Happy Birthday to my Father, and Tom, my brother-in-law, and especially to my wife, Anne.

2nd Day of Chemo (First week session)

Since my treatment plan (Folfox) is a 3-day every other week curative approach with just bloodwork done on the off-weeks, after this week, I will only be posting one weekly update unless there are some unanticipated issues that come up that I feel might help someone who is reading this blog because they have or know someone in the same situation.

Today went pretty well and not quite as long because they only did the sign-in bloodwork and then about a two-hour transfusion of Leucovorin followed by a quick injection of 5-FU and refilled my holster-pump of 5-FU which will be injected over the next 22 hours again.

I had a little bit of neuropathy side effects (cold sensitivity) to ice cream and beverages with ice, so will keep an eye out for that. One of the oncolgy nurses said that by Saturday, it might not bother me as much? They had told me that the 5-FU would/could cause diarreah, but so far it hasn't, although I may get constipated from the anti-nausea meds they told me. Mostly the combined major side effect I'm feeling is fatigue and chemobrain.