Showing posts with label fatigue. Show all posts
Showing posts with label fatigue. Show all posts

Tuesday, February 17, 2009

February



Well, here it is February and Spring will soon be here. I haven't posted since last month's post follow-up and just a quick update today.

The 3 things that are still causing me problems are neuropathy, fatigue and short-term memory loss. I find that I need to write things down more often. The neuropathy is better, but I do notice that it is a slow process and may take several more months to completely abate. General fatigue is touch and go. I have good days mostly, but some days I just end up falling asleep with naps or early at night.

I haven't been to a dentist since last January (2008), and I have a tooth that's bothering me, so I called my oncologist and he said it was fine to go for dental work. I called the dentist this morning and have an appointment for a cleaning and exam on Thursday (day after tomorrow). They insist on this before doing any other dental work. I'll bet my gums are going to bleed worse than usual. I'll blame the chemo!

Thanks for everyone's support and I'll update next month after my next follow-up when they flush the port, check bloodwork and I have my exam.

Wednesday, December 3, 2008

Christmas Time


"Tis the season...I'm trying to keep a positive outlook, but I haven't done much shopping for Christmas gifts yet and next week is my 11th cycle of chemo. Stress and anxiety are kicking in.

Many have told me that the last two cycles can be the toughest with the cumulative side effects of the oxaliplatin mostly. It's also getting a lot colder and I'm already wearing layers to keep warm.

The neuropathy, fatigue and digestive tract "issues" seem to be the worst, as they have been since starting chemo. I can't feel the little "bumps" on the "f" and "j" keys, so typing is slow and I have to keep going back to correct things.

I'm also trying to add my guitar parts to an annual Christmas collaboration project that I've been doing for the past three years now. This year's song is "Please Come Home For Christmas" and is dedicated to the military troops overseas and to others who haven't been able to get home for a long time. I'll post a link to the song when it's finished.

Saturday, November 1, 2008

November 1st and 2/3 through chemo !

It's been a long journey since my colonoscopy last May, 2008, but I can now see a light at the end of the tunnel.

There were a few bumps when I started my chemotherapy that involved having to have my implanted catheter port re-worked and a setback due to low white blood and platelet counts, but this past week, cycle 8 of 12, went about as well as can be expected.

The Oxaliplatin is the main contributor to the most significant side effects, the other chemo meds don't really give me much problems other than some mouth sores, body/skin rashes, headaches and general fatigue, along with the chemobrain or chemofog, which I'm told is similiar to the likes of a mild form of the symptoms of early Alzheimer's. The main thing is that these will all go away when my treatments end after the last week in December.

In life, you take a lot of things for granted until you find yourself not being able to do such everyday things as move around without a pump attached to you, drink a cold glass of water or soda, reach into a fridge without gloves, play a guitar without really "feeling" the strings and even typing on a keyboard can be more time consuming as the neuropathy gives you a numbness in your fingertips and you can't "feel" the bumps on the "F" and "J" keys, so you have to watch as you type and correct manually afterwards.

So, with only 4 cycles left to go of treatments, I do see the light getting a little brighter each day at the end of the tunnel and I look forward to the follow up CEA blood tests, the CT scans and PET scans, having this catheter-port removed and the final follow-up colonoscopy which will be an annual check for the rest of my life.

Again, thanks to all for your continued support and best wishes for the upcoming holidays!!!

Tuesday, October 28, 2008

I'm into my 8th cycle (2/3 of treatments)

I'm back into a regular routine with the full chemo regime. It's not a very comfortable feeling with the neuropathy and fatigue along with this post nasal drip, cough and the usual side effects and a few surprise ones. :(

My oncologist examined me and said that my lungs were clear and thought that the drip and cough might be allergy related. I tend to disagree with him, but after thinking about it, I suppose that it could be?

He said to continue to use the saline nasal spray and Delsym cough medicine and if I thought it would help, I could try Flonase, which is loaded with steroids...

"For best results, use FLONASE daily. Your nasal symptoms may begin to improve in as few as 12 hours. Maximum relief may take several days. Results may vary. If side effects occur, they are generally mild and may include headache, nosebleed, or sore throat. FLONASE is available by prescription only; ask your healthcare professional if FLONASE is right for you."

I chose to hold off because I DO think the cough and post nasal drip is getting better and want to try the saline spray and Delsym (which I only started with last Friday night) for a bit longer.

http://www.delsym.com/

In looking at the calendar today, it appears that if all goes well (and that's a big "IF") that I will finish my chemotherapy treatments the week of December 30th. :)

After that, there will be CEA blood tests and monitoring followed by scans. I'll be having my follow up colonoscopy shortly thereafter which will be an annual procedure. Thanks again for all of the well wishes and positive thoughts and prayers...they are working!

Tuesday, August 19, 2008

Back on Track :)

I was able to resume my chemotherapy treatments today. My bloodwork was "in range" and I've started my 3rd cycle. I was extremely happy to hear the news from my oncologist.

I didn't even feel any pain when the oncology nurse put *the needle* in my port today either. Maybe I was so happy to be back on track that I put a mental block around it?

Anyway, right now my fingers are tingling pretty good and this is taking way more time to type than usual so I'm keeping it short.

No nausea, just neuropathy and fatigue.

I have my portable pump of 5-FU infusing me now until I go back tomorrow. I like when the first day of each cycle is done. This is the day I get the oxaliplatin along with others. The other chemo meds seem very tolerable so far. Won't need the Oxal again now for two weeks :)

Friday, July 18, 2008

Chemobrain

A few of the patients were talking yesterday about something called "chemobrain" which they were experiencing, so I googled it and found this -

What is chemobrain?

The terms "chemobrain" and "chemofog" refer to cognitive changes during and after cancer diagnosis and treatment. Though these terms imply a relation to chemotherapy, it isn't clear that chemotherapy is responsible. What is clear is that some people with cancer do notice increased difficulties with certain mental tasks during and after cancer treatment.

In general, researchers have found that chemotherapy can affect your cognitive abilities in the following ways:

Word finding. You might find yourself reaching for the right word in conversation.
Memory. You might experience short-term memory lapses, such as not remembering where you put your keys or what you were supposed to buy at the store.
Multitasking. Many jobs require you to manage multiple tasks during the day. Multitasking is important at work as well as at home — for example, talking with your kids and making dinner at the same time. Chemotherapy may affect how well you're able to perform multiple tasks at once.
Learning. It might take longer to learn new things. For example, you might find you need to read paragraphs over a few times before you get the meaning.
Processing speed. It might take you longer to do tasks that were once quick and easy for you.
About 20 percent to 30 percent of people undergoing chemotherapy will experience cognitive impairment, though some studies report that at least half the participants had memory problems. Changes in memory during and after treatment may be very subtle. You might notice changes during your everyday tasks and as you start working again after treatment. The memory changes are often so subtle, in fact, that researchers find that people who report having memory difficulties tend to score in the normal ranges on tests of their cognitive ability. That makes it more difficult to understand, diagnose and treat the memory changes.

What causes the memory changes?

Doctors don't know what causes the cognitive changes associated with chemotherapy. It was previously thought that chemotherapy drugs didn't enter your brain, but were kept out by the blood-brain barrier, which separates chemicals that should be in your brain from those that shouldn't. But some researchers now suspect some chemotherapy drugs may be able to slip past the blood-brain barrier. This could potentially affect your brain and your memory.
It isn't clear which chemotherapy drugs are more likely to cause memory changes or if higher doses pose a bigger risk than do smaller ones. And it isn't possible to predict who's more likely to have cognitive impairment after chemotherapy.
A number of factors can cause temporary memory problems in people undergoing chemotherapy — making it difficult to identify the so-called chemobrain from the normal stresses of treatment. Temporary memory problems can, for the most part, be treated. Causes include:
Low blood counts. If your blood counts are low, you might feel tired, making it difficult to concentrate.
Stress. Being diagnosed with cancer and starting treatment is stressful. Stress also makes concentrating difficult.
Medication to treat side effects. Certain medications for treating side effects including nausea and vomiting may cause drowsiness. When you're tired, it may take longer to complete tasks.
Lingering depression. Depression is common in people with cancer. If your depression continues after your treatment, you might find it difficult to pay attention.
Lingering fatigue. Fatigue is a side effect of several types of cancer treatment, including chemotherapy. Your fatigue might end when your cancer treatment ends, though it also can continue after treatment.

"Cancer is hard...getting help shouldn't be."

Wednesday, July 16, 2008

2nd Day of Chemo (First week session)

Since my treatment plan (Folfox) is a 3-day every other week curative approach with just bloodwork done on the off-weeks, after this week, I will only be posting one weekly update unless there are some unanticipated issues that come up that I feel might help someone who is reading this blog because they have or know someone in the same situation.

Today went pretty well and not quite as long because they only did the sign-in bloodwork and then about a two-hour transfusion of Leucovorin followed by a quick injection of 5-FU and refilled my holster-pump of 5-FU which will be injected over the next 22 hours again.

I had a little bit of neuropathy side effects (cold sensitivity) to ice cream and beverages with ice, so will keep an eye out for that. One of the oncolgy nurses said that by Saturday, it might not bother me as much? They had told me that the 5-FU would/could cause diarreah, but so far it hasn't, although I may get constipated from the anti-nausea meds they told me. Mostly the combined major side effect I'm feeling is fatigue and chemobrain.